Hi Barbara,

Poor you, It seems like a guessing game doesn't it. I feel for you being in so much pain and the rash too, I came out in a rash when I started the meds but once the tablets were stopped and started again they were fine. I do hope you get this sorted out soon, and get a proper diagnoses. In the mean time take care and rest all you can. Thinking about you Lorna xx

What a nightmare at least your consultant is concerned - pity about the wait. Where you on 15 mg of predislone before. How fast did you go down. Did you produce tears during the test?

I had the eye paper the test - it really hurt and my bottom lip quivered I was trying to stop myself crying but I couldnt with the shock of torture implements being stuck into my eyes. When I spoke to my consultant he asked me did I produce tears. I said i didnt produced tears as I cried and he smiled and said we if you can cry you dont have sjogrens. I also one counsultant says that it takes a while for everything to show in order for them to give an absolute diagnosis. In the meantime is a bit like a guessing game like Lorna said. Its would seem that the immune disease can change course and jump from one thing to another like RA to lupus or vice versa obviously one will be secondary etc etc

Hope you have something for your rash must be very uncomfortable in this weather.

Big hug

Mari

Hi Barbara
if you look up Sorjins in google there is more then meets the eye .

i was suprised there are 2 types and yes rashes are part of it and joint pain and triedness
and other odd things so he could be well right there .You will need the biospsy to comfirm .

look on the sorjins soticty site i spoke to some one there ,


christine

Hi Barb

To answer your questions. Sometimes my eyes water for days at a time - other times they are dry dry dry for days! Your GP should prescribe the eye gel or sno tears for you. Have you got a pre-pay prescription?

As for the specs - My wrap arounds are prescription glasses. I honestly couldn't cope without them, especally in this weather. Without them the headaches start!

Take care

Love Jeanxxxx

Hi Barbara,

I'm sure I have seen some wrap around sunglasses that go over your glasses, I can't remember if it was in a magazine or on-line somewhere. I'll let you know if I remember any more details.
Varifocals are very expensive aren't they, I've just got some new ones and couldn't believe the price of the lenses!

Doreen xx

[size=7]Jean, did ask once before about some eye gel at GPs but was told unless definite diagnosis, in writing, cant prescribe.

Have just got new prescription sunglasses and varifocals with reactalite, so cant really manage to get anymore just now

Had bad headache today, thought it was partly weather, and partly being kept at hospital for so long

Julie, looks like it!!

Doreen, varifocals are unbelievably expensive!! they always cost a fortune each time I go[size]

barbs what a day you had genlte hugs hun
no wonder your confused,glad nurse got rheumy in see you sory see how long ahd wait but worth it by sounds off it,aww ddint know your mouth that dry bless.
rest up hun we can meet up another time they should been clearer re pred for you.

so he thinks pred will heal it,and did test for sjrgrens i had it done mr garood did it it stung alot but i produced tears after 2 mins they put me out misery feww.
well im glad they found that out as must been quite uncomfy.

sounds like hes saying ra aswell but to work out whihc one primary like did with me mines a primary lupus secondary and still in unstable mode which rheumy said means could switch never heard such thing as this.

id so love give you nice cold drink hug and watch girly movie.
i wear wrap round glasses .


take care hun lv melly

Barb - I think Doreen's idea of sunners to go over your specs is a great idea.

Much love
Jeanxxxx

Hope your dx can be sorted soon , take care ,

Sophie x